TreasureGoddess Christine Posted on Sunday, September 28, 2014 at 5:32PM
This is my son, Joe, who is 14 years old. Joe has Cystic Fibrosis, CF, a genetic lung & digestive disease. Joe volunteers with Children's Miracle Network Hospitals and often gives speeches to groups to help raise money for this awesome charity. This charity helps fund specialists, pay for equipment and anything needed to give kids the best care possible at their local hospital. One of my favorite things about this charity is that 100% of the money raised stays at your local hospital. For us in the KC area, it's KU Medical Center. The salaries and advertising and such comes from separate national funding.
Joe went to Whiteman Air Force Base a couple of weeks ago and spoke to a group of young servicemen and servicewomen that work on the stealth bombers about signing up for a 24 hour marathon of video gaming (or board gaming) to raise money for CMNH called Extra Life. He wasn't feeling well, but got up and stood in front of the room and talked about CF and what it means to his life and how CMN Hospitals helps him and kids like him. It was a really moving speech. Afterwards, a young man came up to Joe and shook his hand. He said people are always coming up and thanking them for their service, but he wanted to thank Joe for HIS service. He said you could be laying in bed feeling sorry for yourself, we can see you don't feel well, but you chose to come out here and make a difference. That is really inspirational and I want to thank you for being here. I have to admit I got a bit teary eyed. It was a really neat moment.
Joe is actually in KU Med now for a 10-14 day stay to get a "tune-up." Much like a car going in for its 30,000 mile checkup, Joe and many teens and young adults with Cystic Fibrosis have to go in for tuneups too. Joe has some antibiotic resistant infections in his lungs that medicines haven't been able to erradicate. Instead, when he feels too badly, he goes in for IV meds and it brings the levels down and he's usually pretty healthy for another 4-6 months. He's a rockstar in my opinion (I know I'm his mom so I'm a titch biased). The kid knowingly goes in to get poked, prodded, evaluated, scheduled and the rest. He does it with a smile and is polite to his medical team, even thanking nurses that had to put in a 3rd initial IV as the first two blew veins. Joe wears his hand knitted PICC covers provided by local knitters and some not-so-local. His favorites come from Ann Smith, a knitter from Oklahoma that sends up a big batch every so often. If you have some extra superwash wool yarn, think about knitting up a few and donating to your local hospitals. Feel free to email me at ChristineATtreasuregoddessDOTcom and I can find homes for them. Unfortunately, there are a lot of kids and adults that need long term IV meds and these PICC Covers are like hugs for their arms. It helps disguise the tubes, it also feels good to have the arm hugged with soft wool while the picc lines are in.
Picc Line FREE PATTERN LINK